Patient engagement in research: challenges and lessons learned - Alexandre Grégoire
Campus UZ Gent - Corneel Heymanslaan 10, Gent
woensdag, 13 februari 2019
12u - 13u (discussion time: 13u - 14u30)
International there is an increased interest in partnering with patients in health research by funders and researchers. The important role of patients in health research is so far often a underplayed aspect. More than just taking part in research as participants, patient partners may well contribute to a range of research activities, including prioritisation, proposal development, ethics, being a co-researcher, implementation, review and results dissemination. Alexandre Grégoire will address these topics and what meaningful partnering with patients in research means.
"Alexandre Grégoire holds a Bachelor of Business Administration (accounting profile) from the Université du Québec à Montréal. With cystic fibrosis and type 1 diabetes, Alexandre underwent a double lung and liver transplant in October 2012. Since his childhood and through his reality of complex care, he has accumulated experience in all types of care in the Quebec health system. In recent years, Alexandre has been actively involved as a patient partner at various levels of governance at the Centre hospitalier de l'Université de Montréal (CHUM), the Institut national d'excellence en santé et services sociaux (INESSS) and in various patient-oriented research networks."
"He is currently a project manager at the Centre of Excellence on Partnership with Patients and the Public (CEPPP), is also the coordinator of the Stratégie de recherche en partenariat avec les patients et le public de l’Unité de soutien SRAP du Québec and has undertaken a Master of research in biomedical sciences (profil patient partnership) at the Université de Montréal in order to further his research skills."
- Lecture Alexandre Grégoire: at noon (12 a.m. – 1 p.m.)
- Afterwards: Discussion (during 1h30) with experts/people who want to discuss deeper about this theme
Researchers in health care, PhD students, Supervisor, members of research boards, patient partners already involved in research
Campus UZ Gent - building 90.15 - B3
Address: C. Heymanslaan 10 - 9000 Ghent
Room: 5.29 (5 B3)
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Practical information: Pieter Beeckman (Pieter.Beeckman@UGent.be)
Content information: Prof. dr. Ann Van Hecke (Ann.VanHecke@UGent.be)